Friday, December 2, 2011

Prosthetic Arms

I am in no way an expert on this topic but I wanted to share what we know so far. Being born without arms is a condition called bilateral upper limb amelias. According to the Dr. we are in contact with, Ivan most likely also has proximal femoral focal deficiency. What this means is that his right leg is short and lacks a knee cap. If this is his diagnosis he would have abnormalities in his hip and pelvis as well. 

The point of all this is to say that he most likely is not a candidate for arm prostheses. Unless of course the technology advances which I am sure it will. Here are some reasons why it is difficult for people with bilateral amelia to use prostheses.

"The technical difficulties in dealing with bilateral upper amelia are tremendous 3,6,7,10 . A few of the major problems are 1) lack of movement to power the prosthesis, necessitating either external power or severe body contortions to create movement, 2) the absence of switch-activating sites for externally powered prostheses, 3) the lack of bony and soft-tissue anchors to hold the prosthesis in place, 4) the nearly total lack of sensory feedback to the patient, and 5) the need for complicated harnessing and power systems beyond the level of understanding of the young patient with amelia."

There are many types of treatments available for improving the function in his right leg but what option would be right for him would not be known without an evaluation at Children's Hospital if he was to come to Canada.

That is all we know for now.

1 comment:

  1. Breanne,
    I just wanted to let you know that it is really not a big deal that he isn't even eligible for them most likely. My niece, who has pretty similar issues, HATED prosthetics when they tried to give the to her. Most people that are born with these types of differing physical make-up, fund the cumbersome and annoying and they really get in the way of them being able to do all the things that they really CAN do. Kind of like someone trying to strap extensions on our arms or legs and expecting us to be able to "perform" better. ;-) Anyway, I wanted to let you know, he will be able to do more than you can imagine...and do it better for NOT having prosthetics. :)